Poster Presentations

Session Title: Alzheimer's Disease (AD) including Non-Cognitive Aspects
Presentation Date: Friday, March 14 – Saturday, March 15, 2009

CHARACTERIZING THE ADVOCATE IN THREE PERSON DECISION-MAKING DISCOURSE FOR PATIENTS WITH DEMENTIA

D. Brauner, A. Mayo
The University of Chicago, Medicine, Chicago, United States


Introduction: Our purpose is to characterize the role of the Advocate, as an alternative model to surrogacy, for patients with dementia in an interaction we call: Three-Person Decision-Making Discourse.
Methods: Participants were patients with dementia who had been referred for joint injection for arthritic pain and were accompanied by a caregiver, whom we call the Advocate. They participated in two informed consent conversations. Each of the Advocates presentations was characterized as to the type and what prompted the presentation. A taxonomy of the types of presentation and prompts was created using a consensus method. Each presentation was then scored as to its type and prompt.
Results: Eight videotaped conversations were analyzed. Taxonomies were developed based on the Advocate's presentations and placed in a Hierarchy based on how they impacted on the patient's autonomy.
Hierarchy of Types of Presentation:

  • Phatic
  • Back - channeling
  • Asks Question (clarification from clinician to patient to check understanding or correct confusion)
  • Provide information (Historical Symptoms)
  • Provide interpretation (Past choices Values Prognosis Decision process)
  • Provide advice/opinion.
Hierarchy of Types of Prompts:
  • Phatic
  • Signaling agreement to previous presentation
  • Direct question asked by patient
  • Direct question asked by clinician
  • Confusion expressed by patient
  • Confusion expressed by clinician
  • Delayed response by patient - nonverbal
  • Apparent confusion by the advocate
  • No evident prompt.
Conclusion: Developing a taxonomy of types and prompts we can better understand the role of the Advocate in Three-Person Decision Making Discourse and begin to create expectations to maintain the maximal autonomy of the patient with dementia.


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