THE DEVELOPMENT OF THE PALLIATIVE CARE NETWORK IN BERLIN 1995 - 2000

H.Christoph Mueller-Busch, Thomas Schindler, Imke Strohscheer

Anesthesiology and Palliative Medicine, GK Havelhöhe, Germany

Aim of investigation: Since 1995 three specialised palliative care units, two hospices, Home-Care-Berlin, nursing services and volunteers cooperate in a structure similar to a network. Aim of this study was to evaluate the role of different palliative care facilities in terminal situations, consider the pros and cons of in- and outpatients palliative care and give recommendations for further implementations.

Methods: The data of about 1600 palliative care patients treated in different palliative care facilities in 1999 were analysed in relation to diagnoses, days of hospitalisation, mortality, location of death, duration and treatment modalities. On the base of these data criteria for the structure, educational needs and improvement in the quality of palliative care were developed.

Results: More then 60% of the patients with advanced cancer could remain at home even in the final phase of their disease. 17% died in one of the hospices and less then 20% spent the last days in hospital. The realisation of good palliative care at home needs high competence, close cooperation and sensitive communication. Educational initiatives and the regular exchange of experiences in a Palliative Care Quality Circle were helpful  to solve problems and improve palliative care while systematic teaching in palliative medicine still is lacking.

Conclusions: Educational efforts must be made to increase the acceptance of palliative care principles in the ambulatory setting. Networks and Palliative Care Quality Circles are needed to overcome discrepancies in in- and outpatients palliative care.