Awareness Day
Tuesday, 26 August, 2008
10:00-14:00
7th Awareness Day
Living with
a neurodegenerative disorder:
the questions we all wanted to ask
but never dared to …
Endorsed by the European Sexual Dysfunction Alliance
Session 1: |
| Chairpersons: |
Mary G. Baker, MBE – President EFNA and
Ignacio Moncada – President ESDA |
| 10:00 – 10:30 |
Welcome and Opening
Mary G. Baker, MBE, London, UK
Laszlo Vecsei, Chair, EFNS Education Committee |
| 10:30 – 10:50 |
Guest Lecture
Gila Bronner, Israel |
| 10:30 – 10:50 |
Presentation
A guide of good practice for cooperation between doctors and Patient Associations (PA) in Europe
Alexander Bisdorff, Luxembourg, Luxembourg |
| 10:50 – 11:10 |
Presentation
A doctor’s dilemma
David B. Vodusek, Ljubljana, Slovenia |
| 11:10 – 11:30 |
Questions |
| 11:30 – 12:00 |
Coffee Break |
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Session 2: |
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Being an ambassador for management and care
Patients, carers and health professionals bring their experiences and needs to improve the quality of life of those living with long-lasting disorders.
Delegates of different patient associations in the field of neurological disorders will be invited to the debate. The following issues will be addressed:
- Living with sexual dysfunction a personal testimony and experience
- RLS, MS, brain tumour, migraine, PD, dystonia
- How to strike up a conversation (counselling) tips to help the patient and doctor communicate effectively when discussing issues of sexuality
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Madrid Declaration |
| 13:45 – 14:00 |
Closure
Mary G. Baker and Ignacio Moncada |
This programme may still undergo changes
Simultaneous translation from English to Spanish will be available
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