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AWARENESS DAY - EDUCATION IN THE BROADER SENSE

Translating the patients needs into a dialogue towards better medical care and quality of life

The Meeting wants to Raise Awareness on the Need to Improve the Dialogue and Partnership with Doctors, Health Professionals, Patients and Carers.

Joint initiative of EFNS, EFNA, the Finnish Neurological Society, the Neurology Foundation of Finland and the Finnish Parkinson's Disease Association

Helsinki, Finland - Friday, 29 August 2003 - 14:00 through 17:30
Holiday Inn Helsinki Fair Centre - Round Hall


Theme: Parkinson's Disease - Outline based on the PD Charter
14:00 Welcome - "Why an Awareness day?" its importance and message

Prof. Wolfgang Grisold, EFNS
Mrs. Hilkka Karkkainen, GAMIAN-Europe
Prof. Heikki Teräväinen, Suomen Parkinson-liitto ry (Finnish PD Association)

14:30 The needs of the people living with PD and their families - need for developing strategic alliances - Charter
Mrs. Mary Baker, President EFNA

15:00 Referral and accuracy of diagnosis
Prof. Reijo Marttila, Turku University Hospital
117::00- 16:00

Referral to multidisciplinary team:

  • Physiotherapist:
    Rehabilitation a European approach
    Mariella Graziano, European PD Physiotherapists
    Rehabilitation Models in Finland
    Tanja Virtanen, Physiotherapist, Suomen Parkinson-liitto ry (Finnish PD Association)

  • PD and Deep Brain Stimulation
    Prof. Jens Volkmann - Christian-Albrechts University, Kiel, Germany
16:00 Coffee Break
16:30

Continuity of care
PD Nurse Heli Hiivola, Suomen Parkinson-liitto ry (Finnish PD Association)

 
  • Patients participation in the management of the disorder
    European PD network - EduPark “Patient’s Education in Parkinson’s Disease” Psychologist Anu Lankinen, Suomen Parkinson-liitto ry (Finnish PD Association)
  • Personal testimony - Heikki Loikala
  • Discussion
17:15- 17:30 Conclusive Remarks



Sponsored by an unrestricted educational grant of Medtronic

 
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