Awareness Day
Tuesday, 26 August, 2008
10:30-15:00
7th Awareness Day
Living with
a neurodegenerative disorder:
the questions we all wanted to ask
but never dared to …
Endorsed by the European Sexual Dysfunction Alliance (ESDA)
Session 1: |
| Chairpersons: |
Mary G. Baker, MBE, UK– President EFNA and
Ignacio Moncada, Spain– Chairman ESDA |
| 10:30 – 10:45 |
Welcome and Opening
Mary G. Baker, MBE, London, UK
László Vécsei, Chair, EFNS Education Committee |
| 10:45 – 11:05 |
Guest Lecture
Sexual dysfunction in Parkinson’s disease: dynamic and unpredictable
Gila Bronner, Israel |
| 11:05 – 11:25 |
Presentation
A guide of good practice for cooperation between doctors and Patient Associations (PA) in Europe
Alexandre Bisdorff, Luxembourg |
| 11:25 – 11:45 |
Presentation
A doctor’s dilemma
David B. Vodusek, Slovenia |
| 11:45 – 12:00 |
Questions |
| 12:00 – 13:00 |
Break and lunch |
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Session 2: |
| Chairpersons: |
Arturo Aviles Aviles Domingues, Spain – Chair, RLS Spain
David B. Vodušek, Slovenia |
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Being an ambassador for management and care
Patients, carers and health professionals bring their experiences and needs to improve the quality of life of those living with long-lasting disorders. |
| 13:00 – 13:15 |
Conference:
“It is time to talk” - tips to help the patient and doctor communicate effectively when discussing issues of sexuality
Francisco Cabello, Spain |
| 13:15 – 13:30 |
“How changes in intimacy can affect people’s lives”.
Interview with a couple who will give a personal testimony of how sexual dysfunction can affect the couple
Milly Lemos, Spain |
| 13:30 – 14:45 |
Delegates from different patient associations, restless legs syndrome, MS, migraine, Parkinson’s disease, dystonia, depression etc. will be invited to debate.
Elena Ruiz de la Torre, Spain -
President, Spanish Migraine Association |
| 14:45 – 15:00 |
Madrid Declaration
Mary G. Baker, UK
Ignacio Moncada, Spain |
This programme may still undergo changes
Simultaneous translation from English to Spanish will be available
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